We often seek expertise from outside the company, and health is no exception. To help us think about the ways we can contribute to the healthcare industry, we formed the Google Health Advisory Council. The Google Health Advisory Council is made up of healthcare experts from provider organizations, consumer and disease-based groups, physician organizations, research institutions, policy foundations, and other fields.
The mission of the Google Health Advisory Council is to help us better understand the problems consumers and providers face every day and to offer us feedback on product ideas and development.
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Advisory Council Chairman
Dean Ornish, M.D.
Founder and President, Preventive Medicine Research Institute, Clinical Professor of Medicine, University of California, San Francisco
Dr. Ornish is the founder and president of the non-profit Preventive Medicine Research Institute in Sausalito, California. He is also Clinical Professor of Medicine at the University of California, San Francisco. For the past 30 years, Dr. Ornish has directed clinical research demonstrating, for the first time, that comprehensive lifestyle changes may begin to reverse even severe coronary heart disease and early prostate cancer, without drugs or surgery. Recently, Medicare agreed to provide coverage for this program. His current research showed that comprehensive lifestyle changes may affect gene expression. He is the author of six best-selling books, including New York Times' bestsellers Dr. Dean Ornish's Program for Reversing Heart Disease, Eat More, Weigh Less, Love & Survival, and The Spectrum. The research that he and his colleagues conducted has been published in the Proceedings of the National Academy of Sciences, Journal of the American Medical Association, The Lancet, Circulation, New England Journal of Medicine, the American Journal of Cardiology, and elsewhere. A one-hour documentary of their work was broadcast on NOVA, the PBS science series, and was featured on Bill Moyers' PBS series, Healing & The Mind. Dr. Ornish is a member of the boards of directors of the U.S. United Nations High Commission on Refugees and the San Francisco Food Bank. He was appointed to the White House Commission on Complementary and Alternative Medicine Policy and elected to the California Academy of Medicine. Dr. Ornish received his medical training in internal medicine from the Baylor College of Medicine, Harvard Medical School, and the Massachusetts General Hospital. He has received several awards, including the 1994 Outstanding Young Alumnus Award from the University of Texas, Austin, the University of California, Berkeley, "National Public Health Hero" award, the Jan J. Kellermann Memorial Award for distinguished contribution in the field of cardiovascular disease prevention from the International Academy of Cardiology, a Presidential Citation from the American Psychological Association, the Beckmann Medal from the German Society for Prevention and Rehabilitation of Cardiovascular Diseases, and others. He was recognized by LIFE magazine as "one of the fifty most influential members of his generation."
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Douglas Bell, M.D., Ph.D.
Research Scientist, RAND Corporation, and Associate Professor of Medicine, David Geffen School of Medicine at UCLA
Dr. Bell is a general internist and researcher focusing on the design and evaluation of health information technology (HIT). As a Research Scientist at RAND, he recently led one of the electronic prescribing pilot studies authorized in the U.S. Medicare Modernization Act to evaluate standards for advanced e-prescribing transactions. Dr. Bell previously led a 3-year study that developed expert panel recommendations for e-prescribing and evaluated their implementation among commercial systems. At UCLA, Dr. Bell is co-director of UCLA's Practice-Based Research Network, which develops systems for integrating research studies into routine clinical care environments. Dr. Bell also conducts research into novel methods for evidence-based online education. He led one of the first randomized trials of online education for physician and he is currently leading a study of online reinforcement exercises that could help physicians retain their learning over time. Finally, Dr. Bell is conducting research on the digital divide among health care providers and is currently leading a project exploring the barriers to implementation of an electronic disease registry system in two safety net clinics. Dr. Bell's training includes an internal medicine residency at Stanford, a Ph.D. in health services research at UCLA, and a 3-year medical informatics fellowship in the Harvard-MIT Health Sciences and Technology program.
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Delos M. Cosgrove, M.D.
Chief Executive Officer, The Cleveland Clinic
Under the leadership of Delos M. Cosgrove, Cleveland Clinic has experienced improved clinical outcomes and increased patient satisfaction, and expanded locally, nationally and internationally. Dr. Cosgrove has enacted policies focused on quality improvement, improved patient experience, and greater transparency and accountability at all levels of the organization. Before retiring from surgery in 2006, Dr. Cosgrove enjoyed one of the most distinguished careers in the field of cardiac and thoracic surgery. He performed more than 22,000 operations and earned an international reputation for expertise in all areas of cardiac surgery, especially valve repair. A pioneer and refiner of advanced surgical techniques, Dr. Cosgrove was a pacesetter in the development of minimally invasive valve surgery, and performed the first minimally invasive mitral valve surgery over a worldwide video network in 1996. As an innovator, Dr. Cosgrove has 30 patents filed for developing medical and clinical products used in surgical environments. Dr. Cosgrove received his medical degree from the University of Virginia School of Medicine in Charlottesville and completed his clinical training at Massachusetts General Hospital, Boston Children's Hospital, and Brook General Hospital in London. Dr. Cosgrove has been an invited lecturer or an honored guest speaker at more than 100 national and international symposia conferences and meetings. He has published nearly 450 journal articles, one book and 17 training and continuing medical education films. He has been honored with Cleveland Clinic Master Clinician Award, Lerner Humanitarian Award, and Innovator of the Year Award, among others.
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Molly Coye, M.D., M.P.H.
Chief Executive Officer, HealthTech
Served 2007 - 2008 Term - Member Currently Inactive
Molly J. Coye, M.D. is founder and CEO of the Health Technology Center (HealthTech), a non-profit education and research organization established in 2000 to advance the use of beneficial technologies in promoting healthier people and communities. Today HealthTech provides objective technology forecasts, innovative decision-making tools, and expert learning networks for 45 Partner organizations. Dr. Coye has served as Commissioner of Health for the State of New Jersey and Director of the California Department of Health Services, in addition to heading the Division of Public Health at the Johns Hopkins School of Hygiene and Public Health, leading marketing and product development for interactive health communication and disease management at HealthDesk Corp, serving as Executive Vice President for the Good Samaritan Health System, and directing The Lewin Group's West Coast office. As a member of the Institute of Medicine, Dr. Coye co-authored the reports "To Err is Human and Crossing the Quality Chasm," chaired the Committee on Access to Insurance for Children, and co-chaired the Committee on Patient Safety Data Standards. Dr. Coye is on the Board of Trustees of the American Hospital Association and the Program for Appropriate Technology in Health (PATH). She was a founding board member of The California Endowment, the largest private health care philanthropy in California. Dr. Coye has her M.D. and M.P.H. degrees from Johns Hopkins University and is board certified by the American College of Preventive Medicine. In 2005, she was selected one of the 100 most influential leaders in health care - and the 25 most influential women in health care - by Modern Healthcare magazine.
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Dan Crippen
Former Congressional Budget Office Director & Reagan White House Assistant
Dan L. Crippen served as the fifth director of the Congressional Budget Office (CBO). Dr. Crippen has served in senior positions in the White House and the United States Senate and is a specialist in issues relating to the federal budget, health care and retirement. From 1987 to 1989, Dr. Crippen served as an advisor to President Reagan on all issues relating to domestic policy, including the preparation and presentation of the federal budget. In the Senate, he served as chief counsel and economic policy adviser to the Senate Majority Leader from 1981 to 1985. Before joining CBO, he was a principal with Washington Counsel, a law and consulting firm. He has also served as executive director of the Merrill Lynch International Advisory Council and as a founding partner and senior vice president of the Duberstein Group. Dr. Crippen has served as chairman of a panel advising NASA on implementing changes after the Columbia disaster as well as serving on the Aeronautics and Safety Advisory Panel for NASA; worked with companies emerging from bankruptcy; testified before Congress and the Federal Trade Commission; and advised stock exchanges on the future of financial markets. He is a consultant for healthcare providers and serves on several boards of companies in the heath care industry, both public and private; serves on the national nominating committee for the National Association of Securities Dealers; conducts research on health care; and contributes articles to journals and newspapers. He currently chairs the Quadrennial Social Security Technical Advisory Panel, reviewing the work of the Social Security actuaries and advises office holders on domestic policy. Dr. Crippen is a member of the Council on Foreign Relations, the American Economic Association and serves on Committee for a Responsible Federal Budget and the CBO Panel of Economic Advisors.
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Linda M. Dillman
Executive Vice President, Risk Management, Benefits and Sustainability, Wal-Mart
Ms. Dillman oversees risk management, benefits, and sustainability for Wal-Mart. She also leads the company's health and wellness efforts. Previously, she was the Executive Vice President and Chief Information Officer at Wal-mart. Ms. Dillman joined Wal-Mart in 1991 through the acquisition of The Wholesale Club in Indianapolis, Indiana. At Wal-Mart, she has served in several key information systems management positions, where her most notable accomplishments were the implementation of the perpetual inventory and store Telxon systems. In 1998, she was named Vice President of Applications Development, and lead the systems conversion for Wal-Mart's acquisition of ASDA in the United Kingdom. Prior to serving as Executive Vice President and CIO, she served as Vice President of International Systems. Prior to her roles at Wal-Mart, she worked for the Hewlett-Packard Company for five years. In addition to memberships in professional and retail organizations, Ms. Dillman serves on the boards of the Network of Executive Women, GS1 Global, the University of Indianapolis (Advisory Board), and the National Center for Women & Information Technology (NCWIT). She was named to Fortune's "50 Most Powerful Women in Business" list in 2003, 2004, and 2005. Ms. Dillman received the University of Indianapolis "Distinguished Alumni" Award in May 2003, and was named the "Information Systems Executive of the Year" by the David D. Lattanze Center for Executive Studies in Information Systems at Loyola College in 2004. She also received the University of Michigan's Stephen M. Ross School of Business "Women in Leadership" Award in 2005. Ms. Dillman has a degree in Business Administration from the University of Indianapolis.
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John Halamka, M.D., M.S.
Chief Information Officer, Beth Israel Deaconess Medical Center & Harvard Medical School and Chairman, Healthcare Information Technology Standards Panel (HITSP)
John D. Halamka, M.D., M.S. is Chief Information Officer of Harvard Medical School, Chief Information Officer of Beth Israel Deaconess Medical Center, Chairman of the New England Health Electronic Data Interchange Network (NEHEN) , Chief Information Officer of the Harvard Clinical Research Institute (HCRI), and an Associate Professor of Emergency Medicine at Harvard Medical School. Dr. Halamka completed his undergraduate studies at Stanford University where he received a degree in Medical Microbiology and a degree in Public Policy. While at Stanford, he authored three books on technology related issues and formed a software development firm, Ibis Research Labs, Inc. Additionally, he served as a columnist for Infoworld, technical editor of Computer Language Magazine and technology consultant to several startup companies. In 1984, Dr. Halamka entered medical school at the University of California San Francisco and simultaneously pursued graduate work in Bioengineering at the University of California, Berkeley. Dr. Halamka served his residency at Harbor-UCLA Medical Center in the Department of Emergency Medicine. In 1996, Dr. Halamka joined the faculty of Harvard Medical School and continues to integrate his knowledge of medicine and technology focusing on the use of the Internet to exchange clinical patient data. He is also an active teacher, lecturing on both medical and technology topics to the students, residents, and faculty of Harvard and MIT. At Beth Israel Deaconess, he is responsible for all clinical, financial, administrative and academic information technology serving 3000 doctors, 12000 employees and one million patients. As Chairman of NEHEN, he oversees the HIPAA transactions exchanged among the payors and providers in New England. As Chief Information Officer of HCRI, he oversees the data management of clinical trials associated with Harvard Medical School.
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Bernadine Healy, M.D.
Former head of the National Institutes of Health (NIH), Health Editor & Columnist, U.S. News & World Report
Dr. Healy has been a medical columnist and health editor for U.S. News and World Report since 2002 and is medical contributor to MSNBC, and a panelist on the PBS show "To the Contrary." For six years Dr. Healy was medical consultant and commentator for CBS News. Dr. Healy was a past director of the NIH, appointed by President George H. W. Bush to that post in early 1991. At NIH Dr. Healy conceived of and launched the NIH Women's Health Initiative. Prior to her appointment at NIH, Dr. Healy was chairman of the Research Institute of the Cleveland Clinic Foundation, where she directed the research programs of nine departments. In early 1984, Dr. Healy became deputy director of the Office of Science and Technology Policy at the White House. She served as chairman of the White House Cabinet Working Group on Biotechnology and was executive secretary of the White House Science Council's Panel on the Health of Universities. From June 1976 until February 1984, Dr. Healy served on the faculty of the Johns Hopkins University School of Medicine and Hospital. The author or co-author of over 220 peer review manuscripts in cardiovascular research and health and science policy, Dr. Healy has served on several editorial boards and is the former Editor-in-Chief of the Journal of Women's Health. Her books include A New Prescription for Women's Health, and Living Times.
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Bernie Hengesbaugh
Chief Operating Officer, The American Medical Association (AMA)
Bernie Hengesbaugh is the Chief Operating Officer of the American Medical Association (AMA). Among his most important current projects are efforts to ensure the AMA can support physicians in adopting e-health technologies, and spearheading a customer relationship management project within the AMA, so that the AMA can serve its members more effectively. Mr. Hengesbaugh is also the recently retired Chairman of CNA Financial Corporation (CNA), a leading property/casualty insurance company based in Chicago. He became CNA's first Chief Operating Officer in 1998 and was named Chief Executive Officer one year later. He served in the CEO role until 2002 after which he continued as Chairman until his retirement in early 2004. Mr. Hengesbaugh has also been active in insurance industry issues. He served as Chairman of the American Insurance Association in 2001 and 2002 and was also Chairman of the Insurance Information Institute in 2001. Before joining CNA, Mr. Hengesbaugh was a Partner with Touche Ross & Co., now Deloitte & Touche. Mr. Hengesbaugh is the recent past-Chairman of the Joint Commission on Accreditation of Healthcare Organizations (JCAHO) and serves on the board of The Adler Planetarium. Mr. Hengesbaugh received his undergraduate degree in accounting at Saint Joseph's College, Rensselaer, Indiana and an MBA at Indiana University Graduate School of Business, Bloomington, Indiana. He is a Certified Public Accountant and a member of the American Institute of Certified Public Accountants.
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Douglas E. Henley, M.D., F.A.A.F.P.
Executive Vice President, American Academy of Family Physicians (AAFP)
Dr. Henley serves as Executive Vice President and Chief Executive Officer for the American Academy of Family Physicians (AAFP). Dr. Henley has been an AAFP physician member and volunteer since 1973. Dr. Henley was recently appointed as commissioner of the American Health Information Community, formed to help advance efforts to reach President Bush's call for most Americans to have electronic health records within ten years. Dr. Henley also served as one of the inaugural commissioners of the Certification Commission for Healthcare Information Technology, created as an impartial panel to certify electronic health records and other healthcare information technology products. Henley is a founding member of the Ambulatory care Quality Alliance (AQA) Steering Committee, whose mission is to improve health care quality and patient safety through an organized approach to the implementation of physician performance measurement, data stewardship, and reporting. Prior to assuming the position of EVP at AFFP, Dr. Henley was in private practice for 20 years in his hometown of Hope Mills, N.C. He is the first practicing family physician to be named EVP and the first AAFP past-president and board chair to serve in that position. Dr. Henley has served on numerous AAFP committees and commissions including the Commission on Legislation and Governmental Affairs, Commission on Health Care Services, Commission on Public Health and Scientific Activities, Committee on Scientific Program and the Committee on Resident and Student Affairs. Dr. Henley's many appointments include serving on numerous editorial boards, some among them are the Family Practice News and Journal of Family Practice and the American Medical Association Current Procedural Terminology Editorial Panel. Dr. Henley is a graduate of the University of North Carolina School of Medicine, Chapel Hill, and the university's family practice residency program. He is board certified by the American Board of Family Medicine and is an AAFP Fellow.
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David Kessler, M.D.
Former FDA Commissioner, Vice Chancellor-Medical Affairs & Dean, School of Medicine, UCSF
Dr. Kessler is the Dean of the School of Medicine and the Vice Chancellor for Medical Affairs at the University of California, San Francisco. Prior to this appointment, Dr. Kessler served for six years as the Dean of the Yale University School of Medicine. Dr. Kessler also served as Commissioner of the United States Food and Drug Administration (FDA) from November 1990 until March 1997. From 1984 until his FDA appointment, he was the medical director of the Hospital of the Albert Einstein College of Medicine in the Bronx, New York. From 1986 until 1990, Dr. Kessler also taught food and drug law at the Columbia University School of Law in New York. He was a consultant to the United States Senate Labor and Human Resources Committee from 1981 until 1984. Dr. Kessler's book, A Question of Intent, was published by Public Affairs in January, 2001. In addition, Dr. Kessler has published numerous articles in The New England Journal of Medicine, JAMA, and other major medical journals. He serves on the board of various organizations including the Elizabeth Glaser Pediatric AIDS Foundation, Doctors of the World, National Center for Addiction and Substance Abuse at Columbia University, and the Henry J. Kaiser Family Foundation. Dr. Kessler is a 1973 magna cum laude, Phi Beta Kappa graduate of Amherst College. He received his J.D. degree from The University of Chicago Law School, where he was a member of the Law Review, in 1978, and his M.D. degree from Harvard Medical School in 1979. He did his internship and residency in pediatrics at the Johns Hopkins Hospital. In 1986, he earned an Advanced Professional Certificate from the New York University Graduate School of Business Administration.
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John Lumpkin, M.D., M.P.H.
Senior Vice President, Director of Health Care Group, Robert Wood Johnson Foundation
Dr. Lumpkin is the Senior Vice President and the Director of the Health Care Group at the Robert Wood Johnson Foundation (RWJ). Before joining the Foundation in April 2003, Dr. Lumpkin served as Director of the Illinois Department of Public Health for 12 years. During his more than 17 years with the department, he served as Acting Director and prior to that as Associate Director. Dr. Lumpkin has participated directly in the health and health care system, first practicing emergency medicine and teaching medical students and residents at the University of Chicago and Northwestern University. After earning his M.P.H. in 1985, he began caring for the more than 12 million people of Illinois as director of a state public health agency with more than 1,300 employees in seven regional offices, three laboratories and locations in Springfield and Chicago. Dr. Lumpkin is a member of the Institute of Medicine of the National Academies and a fellow of the American College of Emergency Physicians and the American College of Medical Informatics. He has been chairman of the National Committee on Vital and Health Statistics, and served on the Council on Maternal, Infant and Fetal Nutrition, the Advisory Committee to the Director of the U.S. Centers for Disease Control and Prevention, and the National Institute of Medicine's Committee on Assuring the Health of the Public in the 21st Century. He is the author of numerous journal articles and book chapters. Dr. Lumpkin earned his M.D. and B.M.S. degrees from Northwestern University Medical School and his M.P.H. from the University of Illinois School of Public Health. He is trained in emergency medicine at the University of Chicago and has served on the faculty of the University of Chicago, Northwestern University, University of Illinois at Chicago and currently teaches at Princeton University.
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John Rother
Group Executive Officer of Policy & Strategy, AARP
Mr. Rother is the Policy and Strategy Director for AARP. He is responsible for federal and state public policy formulation, and for policy research and analysis, across the broad range of issues that affect Americans 50 and older. He is also responsible for AARP's Global Aging Initiative, and for developing the overall advocacy strategy that guides the work of AARP staff and volunteers. Mr. Rother came to AARP in 1984, after 4 years as Staff Director of the U.S. Senate Special Committee on Aging under Chairman John Heinz (R-Pa). Prior to that, he was Special Counsel for Health and Labor to Senator Jacob Javits (R-NY). He is a graduate of Oberlin College and the University of Pennsylvania. Mr. Rother is a frequent presence in the media and has testified before the Congress on many occasions. He is expert on a wide range of issues, including Social Security, pensions, Medicare, private health insurance, Medicaid, long-term care, older workers, and consumer protection.
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Anna-Lisa Silvestre
Vice President, Online Services, Kaiser Foundation Health Plan, Inc.
Anna-Lisa Silvestre is Vice President, Online Services at Kaiser Permanente. She has developed and overseen the strategy for the organization's web presence since 1995. The award-winning www.kp.org, enables nearly 2 million active members to access their personal health record, email their doctor and participate in health behavior programs, as well as including self-service account administration for employers and brokers. Anna-Lisa received her undergraduate degree in Sociology from the University of Oregon and a Master's degree in Public Health from the University of California, Berkeley. She serves on Google's Health Advisory Council and has presented at conferences world wide on online health care for consumers.
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Greg Simon, J.D.
President, FasterCures
Mr. Simon became President of FasterCures in July 2003. FasterCures is an "action tank" committed to saving lives by saving time. Mr. Simon was the Chief Domestic Policy Advisor to Vice President Al Gore from 1993 to 1997, specifically with regard to economic, science, and technology issues. He oversaw a number of initiatives, including the programs of the National Institutes of Health, National Cancer Institute, Food and Drug Administration (FDA), the Human Genome Project, and the development of the regulatory framework for biotechnology products. Prior to work in the White House, Mr. Simon served on Gore's Senate staff as Legislative Director and as Staff Director of the Investigations Subcommittee of the House of Representatives' Science, Space, and Technology Committee. Mr. Simon was awarded the 2004 Sharon Nelson Leadership Award from the Shidler Center for Law, Commerce, and Technology at the University of Washington School of Law, in honor of his significant contributions in the fields of law and technology. In 2000, Mr. Simon was invited by the State Department under its expert program to visit government officials and citizens groups throughout the European Union to discuss the development of biotechnology regulation in the United States. Mr. Simon's consulting work has included genomics research, blood safety, biomedical ethics, chronic disease management, and immunotherapeutics. Prior to joining FasterCures, Mr. Simon was a principal at Infotech Strategies, a Washington, D.C. consulting firm with special expertise in health technology, biotech, education technology, and communication technology. Earlier, he was CEO of Simon Strategies/Mindbeam, a consulting firm specializing in biotechnology, healthcare, technology, and information technology among other issues. Mr. Simon received his bachelor's degree from the University of Arkansas and his law degree from the University of Washington School of Law.
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Mark D. Smith, M.D., MBA
President & Chief Executive Officer, The California HealthCare Foundation
Dr. Smith is the President and CEO of the California Health Care Foundation. The Foundation is an independent philanthropy with assets of $800 million, headquartered in Oakland, California and dedicated to improving the health of the people of California through its three program areas: Innovations For The Underserved, Better Chronic Disease Care, and Market and Policy Monitor. A board-certified internist, he is a member of the clinical faculty at the University of California San Francisco and an attending physician at the Positive Health Program for AIDS care at San Francisco General Hospital. He is a member of the Institute of Medicine and serves on the board of the National Business Group on Health. Prior to joining the California HealthCare Foundation, Dr. Smith was Executive Vice President of the Henry J. Kaiser Family Foundation and previously served as Associate Director of the AIDS Service and Assistant Professor of Medicine and of Health Policy and Management at Johns Hopkins University. He has served on the Performance Measurement Committee of the National Committee for Quality Assurance and the editorial board of the Annals of Internal Medicine. Dr. Smith received a B.A. in Afro-American Studies from Harvard College, an MD from the School of Medicine at the University of North Carolina at Chapel Hill. He received an MBA with a concentration in health care administration from the Wharton School at the University of Pennsylvania.
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Paul Tang, M.D.
Internist & Vice President, Chief Medical Information Officer, Palo Alto Medical Foundation (PAMF) & Chairman, Board of Directors, American Medical Informatics Association (AMIA)
Dr. Tang is an Internist and Vice President, Chief Medical Information Officer at the Palo Alto Medical Foundation (PAMF), Sutter Health. He is also Associate Clinical Professor at the University of California, San Francisco, School of Medicine. Dr. Tang co-chaired the Strategy and Implementation subcommittee of the 1991 Institute of Medicine (IOM) committee which recommended that the United States adopt computer-based patient record systems nationwide. He served as Chairman of the Board of the Computer-based Patient Record Institute. In 1994, Dr. Tang was appointed Medical Director of Information Systems at Northwestern Memorial Hospital and Associate Professor of Medicine at Northwestern University Medical School. At Northwestern, Dr. Tang implemented a computer-based patient record (CPR) system, for which he received the 1998 Nicholas E. Davies Award for Excellence in CPR System Implementation. Dr. Tang is Chairman of the Board for the American Medical Informatics Association and is a member of the National Committee on Vital and Health Statistics (NCVHS). Dr. Tang serves on the IOM's Health Care Services Board and chaired a recent IOM patient safety committee. He is a member of the Markle Foundation's Connecting for Health Steering Committee and its Personal Health Technology Council. Dr. Tang has served on numerous committees of the National Institutes of Health, National Research Council, National Academy of Sciences, Institute of Medicine, and Computer Science and Technology Board. He is a Fellow of the American College of Physicians, the American College of Medical Informatics, the College of Healthcare
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Sharon Terry, M.A.
President & Chief Executive Officer, Genetic Alliance
Ms. Terry is President and CEO of the Genetic Alliance, a network transforming health by promoting an environment of openness centered on the health of individuals, families and communities. She is the founding Executive Director of PXE International, a research advocacy organization for the genetic condition pseudoxanthoma elasticum (PXE). She also co-directs a 33-lab research consortium and manages 52 offices worldwide for PXE International. Ms. Terry is a co-founder of the Genetic Alliance Biobank. She is committed to bringing together diverse stakeholders that create novel partnerships in advocacy; integrating individual, family, and community perspectives to improve health systems; and revolutionizing access to information to enable translation of research into services and individualized decision making. She serves as Secretary's Advisory Committee on Heritable Disorders and Genetic Diseases in Newborns and Children and the National Advisory Council for Human Genome Research, NHGRI, NIH and also serves on the boards of the Biotechnology Institute, DNA Direct, National Coalition of Health Professional Education in Genetics, and the Coalition for 21st Century Medicine. Ms. Terry is the chair of the Coalition for Genetic Fairness that was instrumental in the passage of the Genetic Information Nondiscrimination Act. She is a member of the IOM Roundtable on Translating Genomic-Based Research for Health and is also chair of the Social Issues Committee of American Society of Human Genetics. In 2005, she received an honorary doctorate from Iona College for her work in community engagement and haplotype mapping, and in 2007 received the first Patient Service Award from the UNC Institute for Pharmacogenomics and Individualized Therapy.
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John Tooker, M.D., MBA, F.A.C.P.
Executive Vice President & Chief Executive Officer, American College of Physicians (ACP)
Dr. Tooker is the Executive Vice President (EVP) and Chief Executive Officer (CEO) of the American College of Physicians (ACP) located in Philadelphia, Pennsylvania. Prior to joining the College in 1995 as Deputy EVP and Chief Operating Officer (COO), Dr. Tooker was Vice Chair of the Department of Medicine and Program Director of the Internal Medicine Residency at the Maine Medical Center in Portland, Maine and in the practice of Pulmonary and Critical Care Medicine. Dr. Tooker received his medical degree from the University of Colorado, School of Medicine followed by an internship and residency in Internal Medicine at Bellevue Hospital in New York City and at the University of Colorado in Denver. Following service in the U.S. Navy from 1973-1975 at the Naval Regional Medical Center in Bremerton, Washington, where he was the Director of Intensive Care, Dr. Tooker completed a fellowship in Pulmonary Medicine and Critical Care at the Maine Medical Center and a Pulmonary Research fellowship at the University of Washington School of Medicine. In June 2001, Dr. Tooker completed the Executive MBA Program at the Fox School of Business at Temple University. He is currently an Adjunct Professor of Medicine at the University of Pennsylvania School of Medicine. He also serves on the eHealth Initiative and NCQA boards of directors and as a Commissioner on the Certification Commission for Health Information Technology (CCHIT).
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Doug Ulman
President, Lance Armstrong Foundation
Mr. Ulman is a three-time cancer survivor and national cancer survivorship advocate. After overcoming chondrosarcoma during his sophomore year in college and malignant melanoma twice since, in 1997 Mr. Ulman founded the Ulman Cancer Fund for Young Adults, a non-profit organization to provide support, education, and resources to young adults, their families and friends who are affected by cancer. He served as Executive Director of the Ulman Cancer Fund for four years. In 2001, he joined the Lance Armstrong Foundation (LAF) as director of survivorship and today serves as the Foundation's president. Mr. Ulman has received numerous awards for his service to the community. In 2002, he was selected from more than 20,000 individuals to appear on more than 15 million boxes of Wheaties Energy Crunch as an American Everyday Hero. In 2003, he was selected as the Austin Under-40 award winner in the healthcare category. In 2005, he was honored by both the American Psychosocial Oncology Society and the Association of Oncology Social Workers. Mr. Ulman currently holds numerous civic and charitable board positions across the country and is serving a four-year term as the Chairman of the National Cancer Institute Director's Consumer Liaison Group. He also sits on the executive board of the Ulman Cancer Fund for Young Adults and is a founder of the LIVESTRONG™ Young Adult Alliance. Following his three cancer diagnoses, Mr. Ulman returned to the soccer field and helped Brown University to three Ivy League Championships in four years. He has participated in ten marathons, including a 100-mile marathon in the Himalayan Mountains.
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Robert M. Wachter, M.D.
Professor of Medicine, University of California-San Francisco (UCSF); Associate Chairman, UCSF Department of Medicine; Chief of the Medical Service, UCSF Medical Center
Dr. Wachter is Professor and Associate Chairman of the Department of Medicine at the University of California, San Francisco, where he holds the Lynne and Marc Benioff Endowed Chair in Hospital Medicine. He is also Chief of the Medical Service at UCSF Medical Center and has published 200 articles and 6 books in the fields of quality, safety, and health policy. Dr. Wachter coined the term "hospitalist" in a 1996 New England Journal of Medicine article, served as the first elected president of the Society of Hospital Medicine, and edits the field's main textbook. He is generally considered the academic leader of the hospitalist movement, the fastest growing specialty in the history of modern medicine. He is also a national leader in the fields of patient safety and healthcare quality. He is editor of AHRQ WebM&M (http://webmm.ahrq.gov), a case-based patient safety journal on the Web, and AHRQ Patient Safety Network (http://psnet.ahrq.gov), the leading federal patient safety portal. Together, the sites receive more than 1 million unique visits each year. His book on medical errors, Internal Bleeding: The Truth Behind America's Terrifying Epidemic of Medical Mistakes, now in its fourth printing, received glowing reviews and has been a national bestseller. Dr. Wachter has discussed patient safety on Good Morning America, PBS's NewsHour, CNN's American Morning, CBS Sunday Morning, The Big Idea with Donny Deutsch, and Imus in the Morning, and been quoted in virtually every major newspaper and newsmagazine. He received one of the 2004 John M. Eisenberg Awards, the nation's top honor in patient safety. In 2005, Modern Physician magazine named him one of the 30 most influential physician-executives in the United States.
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Matthew Zachary
Young Adult Cancer Patient Advocate, Founder & Executive Director, The I'm Too Young for This! Cancer Foundation, Inc.
Mr. Zachary was a 21-year old college senior and aspiring concert pianist when he slowly lost use of his left hand, was diagnosed with pediatric brain cancer and told he'd likely never perform again. Twelve years and four albums later, Mr. Zachary's struggle to get busy living has inspired thousands. Today, he is an award-winning composer, accredited thought-leader in the youth cancer culture and a credentialed public speaker. In 2007 he founded I'm Too Young For This!, a pioneering click-and-mortar social enterprise in the Web2.0/Health1.0 space that was ranked a TIME Magazine Best 50 Website in it's inaugural year. It's mission is to end isolation and improve survival rates for young adults by using music, art and social media. Recognized as a trend influencer, Mr. Zachary has 15 years of experience in advertising, marketing, IT and visual communications in addition to strategic expertise PR, consumer healthcare, nonprofit management and social media. A native of Brooklyn, NY, Matthew holds an interdisciplinary BA from the State University of New York at Binghamton that combined the music, theater, computer science, and sociology disciplines.
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Kirk J. Nahra, J.D.
Partner, Wiley Rien LLP
Mr. Nahra is a partner with Wiley Rein LLP in Washington, D.C., where he specializes in healthcare, privacy, information security and insurance fraud litigation and counseling for the health care and property/casualty insurance industries and others in the financial services industry and elsewhere facing compliance obligations. He is chair of the firm's Privacy Practice and co-chair of its Health Care Practice. He works with insurers and health care industry participants in developing compliance programs and defending against government investigations into their practices. Mr. Nahra has served on the Board of Directors of the International Association of Privacy Professionals, and is the editor of Privacy Advisor, the monthly newsletter of the International Association of Privacy Professionals. He is a Certified Information Privacy Professional. He also serves on the Advisory Board for the Health Law Reporter and the Health Care Fraud Report. He was named as the Co-Chair of the Confidentiality, Privacy and Security Workgroup, a panel of government and private sector privacy and security experts advising the American Health Information Community (AHIC) on privacy and security issues arising from health information technology. He has been named an expert practitioner by the Guide to the Leading US Healthcare Lawyers, a leading health care lawyer by The Best Lawyers in America directory and one of the leading privacy 'hired guns' by Computerworld. Mr. Nahra received his law degree from Harvard Law School, Cum Laude, in 1987. He received his undergraduate degree from Georgetown University, magna cum laude and Phi Beta Kappa, in 1984.
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Alan F. Westin, J.D., Ph.D.
Professor of Public Law & Government Emeritus Columbia University, Founder, The Center for Social & Legal Research & President, Privacy & American Business
Dr. Westin is a leading authority on consumer-privacy public opinion surveys and in understanding and interpreting the privacy attitudes of the American public. He was Professor of Public Law and Government Emeritus at Columbia University where he taught for 37 years. He was the founder of the Center for Social & Legal Research and President of its Privacy & American Business activity. He is also the author or editor of 26 books on constitutional law, civil liberties, American politics, and privacy. In 2005, he received the Privacy Leadership Award of the International Association of Privacy Professionals, the nation's leading organization for privacy officers in business, government, and the non-profit sector. He has worked with Louis Harris & Associates (now Harris Interactive) and Opinion Research Corporation (ORC) on over 60 national privacy surveys since 1978. He created a consumer-privacy segmentation of the American public that captures the continuing orientations of three main attitudinal groups of consumers on privacy issues. His reports have been featured in the New York Times, Wall Street Journal, Consumer Reports, and dozens of other national publications. Dr. Westin has also advised many consumer-product companies, including IBM, American Express, Citicorp, Bell Atlantic, Empire Blue Cross and Blue Shield, Equifax, Microsoft, Chrysler, and Prudential Insurance, on privacy governance and policies within their companies. Dr. Westin has been a featured speaker at the U.S. Department of Health and Human Services Privacy Task Force Conference on Medical Records and Privacy (February 1993); a reviewer of reports on privacy for the National Institute of Medicine (on emerging regional health data systems), the Journal of the American Medical Association, and for the U.S. Office of Technology Assessment (on privacy and the computerized medical record). |
Institutions or affiliations are listed for identification purposes only.